Genzyme

Rare Disease Day

February 28, 2014 marks the seventh international Rare Disease Day, coordinated by EURORDIS and other patient organizations. As a pioneer in the field of rare genetic diseases, Genzyme has supported this initiative since its inception. Learn more about our Rare Disease Day activities from around the world.

Learn More Torch

Rare Disorders Without Borders

Rare Disease Day is February 28, 2014

Genzyme, a Sanofi company, is a proud supporter of Rare Disease Day, an international initiative coordinated by the European Organization of Rare Disorders (EURORDIS).

Imagine being diagnosed with a chronic, debilitating disease whose name you’d never heard of before, a disease so rare that it may have taken medical professionals years to accurately pinpoint the diagnosis, a disease that affects only a few thousand or even a few hundred people around the world. Where do you turn for information and support?

Rare Disease Day, commemorated annually on the last day of February, is one way to overcome the isolation that often accompanies having a rare disease. While each disease impacts a small number of individuals, there are over 6,000 rare diseases affecting more than 60 million people in Europe and the U.S. alone, and Rare Disease Day can build global communities and connections among many of these patients. In addition, the day encourages decision-makers and the general public to learn about rare diseases, develop an understanding of how they impact patients’ lives, and stand in solidarity with those affected.

As a pioneer in the field of rare genetic diseases, Genzyme has supported Rare Disease Day since its inception in 2008. Genzyme locations around the world are participating in a variety of Rare Disease Day initiatives.

One of the company’s signature events is an Olympic-style torch relay run across four Massachusetts Genzyme sites: Framingham (Science Center), Waltham (R&D), Allston (manufacturing), and Cambridge (Genzyme Center, corporate headquarters). Other sites around the world are participating virtually by organizing local runs and posting live updates to Twitter (#GenzymeRelay).

Other activities include media campaigns, public awareness events, policy advocacy activities, art and photography exhibits, and events to support patients and their caregivers.

Argentina

Bangkok,

Thailand

China

Florida,

USA

Framingham, Waltham,

Allston, Cambridge,

Massachusetts, USA

Belgium

Germany

Hanoi,

Vietnam

Hong Kong

Italy

Manila,

Philippines

Naarden,

Netherlands

Paris,

France

São Paulo,

Brazil

Singapore

South Korea

Spain

Sydney,

Australia

Taipei,

Taiwan

Tokyo,

Japan

United Kingdom

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